Navigate post-transplant communication requests and policies
It is common for transplant patients and donors to want to connect after transplant. While post-transplant communications are recognized as part of a healthy adjustment following transplant, there are privacy rules that limit when and how patients and donors can connect after transplant.
Explore our confidentiality policy and how to navigate patient and donor communication and access the forms you need to facilitate communication between a patient and donor.
Patient and Donor Confidentiality
We follow a strict confidentiality policy for patients and Be The Match Registry® donors. The policy is based on U.S. federal laws and is designed to protect the privacy of patients and donors.
During the first 12 months following transplant, we allow only anonymous communication. All communications—such as cards, letters and gifts—are passed between patients and donors through our Patient Advocacy and Navigation team.
For full details on the review and exchange process, access our Anonymous Correspondence and Gifts: Policies and Procedures.
After the 12-month waiting period, patients or donors can request consent to release personal information. However, your transplant center and some donor registries may have different policies and waiting periods. It is important to be aware of these policies when communicating with your patients.
Find more details in the Transplant Center Manual of Operations and our listing of policies for international cooperative registries, donor centers and transplant centers:
- Transplant Center Manual of Operations Chapter 11: Post-Transplant Follow-Up
- International Policies Regarding Post-Transplant Communications between Donors and Recipients
Navigating Post-Transplant Communication
We strive to make communication between patients and donors as easy as possible. Our dedicated team will help both parties navigate post-transplant communications. We can answer questions on specific policies, help fill out consent forms and keep the process moving efficiently.
Contact us for help with patient-donor communication.
Post-Transplant Communication Forms
Use these forms to facilitate the anonymous exchange of letters and gifts and to request the release of personal information for direct communication between the patient and donor.
Your transplant center or the donor center completes this form to facilitate the anonymous exchange of gifts and letters between the patient and donor.
Your transplant center or the donor center completes this form to express interest on behalf of the patient or donor to exchange consent for direct communication.
A patient or donor completes this consent form to provide personal contact information to the other party. Also available in Spanish.
A donor or the spouse (or first-degree relative) of a recipient who is deceased completes this special consent form when the donor or relative wishes to exchange personal information. Also available in Spanish.
Questions About Post-Transplant Communication?
Our Patient Advocacy and Navigation team is ready to help.
1 (888) 999-6743