It's common for recipients and donors to want to connect with one another after transplant. Post-transplant communications are recognized as part of a healthy adjustment following transplant.
Be The Match follows a strict confidentiality policy for donors listed on our Registry, based on U.S. federal laws, which is designed to protect the privacy of recipients and donors. During the 12 months following transplant, Be The Match allows only anonymous communications, which are passed through Patient Services. Consent to release personal information may be requested after the 12 month waiting period. However, some transplant centers and donor registries have different policies and waiting periods. It’s important to be aware of these policies when communicating with your recipients and donors. See Chapter 11: Post Transplant Follow-Up in the Transplant Center Manual of Operations or Donor Center Manual of Operations for more details.
Navigating Post-Transplant Communication
We strive to make communication between recipients and donors as easy as possible. Our dedicated team will help both parties navigate post-transplant communications. We can answer questions on specific policies, help fill out consent forms, and keep the process moving efficiently.
Contact us for help with patient/donor communications.
- Post-Transplant Consent Request (PDF): form completed by the transplant center or donor center to express interest on behalf of the recipient or donor to exchange consent for communication.
- Post-Transplant Consent to Release Personal Information (PDF): consent form completed by a donor or recipient to provide personal contact information to the other party. Spanish versions also available: Spanish Post-Transplant Consent to Release Personal Information (PDF)
- Post-Transplant Anonymous Exchange Form (PDF): form completed by the transplant center or donor center to facilitate anonymous exchange of gifts and letters between the donor/recipient pair.
- Post-Transplant Consent Form to Release Personal Information after Recipient Death (PDF): special consent form completed by a donor or the spouse (or first degree relative) of a recipient who is deceased, but the donor or relative wishes to exchange personal information. Also available in Spanish: Spanish Post-Transplant Consent Form to Release Personal Information after Recipient Death
- Review & Exchange of Post-Transplant Anonymous Correspondence & Gifts (PDF)
Procedure for effectively reviewing and submitting to the NMDP cards, letters, and gifts to be exchanged between donors and receipients after transplant.