Sickle Cell Disease: Exploring treatment options and psychosocial care
Jointly planned by the National Marrow Donor Program/Be The Match and Sickle Cell Transplant Advocacy & Research Alliance (STAR)
Date: Wednesday, July 17, 2019
Time: Noon – 1pm (CDT)
Identifying individual risks, benefits and eligibility criteria for sickle cell disease treatment options including blood and marrow transplant and gene therapy is essential to helping patients and their families/caregivers make choices. Join our speakers who will share strategies for discussing participation in SCD clinical trials, addressing the psychosocial and financial concerns of treatment options, and using educational resources to facilitate shared decision-making.
- Describe treatment advances in BMT and emerging gene therapy for sickle cell disease, including patient eligibility, risks, benefits, and outcomes
- Engage patients and families in clinical trial discussions to advocate for and identify options that reduce participation barriers
- Apply strategies to proactively identify and address psychosocial and financial concerns with treatment choices
- Provide information to address the resource needs of patients and their family
The goal of this activity is to ensure that members of a multidisciplinary team have the knowledge and skills necessary to apply the standards of care to their practice and healthcare setting for patients with sickle cell disease.
Jennifer Krajewski, MD
Hackensack University Medical Center
STAR Alliance Education Committee Co-Chair
Jennifer Krajewski, MD, is a Pediatric Hematologist-Oncologist at Hackensack University Medical Center. Dr. Krajewski also serves as the Co-Chair of Education/Outreach/Advocacy Committee for the Sickle Cell Transplant Alliance for Research (STAR).
Timothy Olson, MD, PhD
Children’s Hospital of Philadelphia
Timothy Olson, MD, PhD, is a Pediatric Hematologist-Oncologist at Children’s Hospital of Philadelphia where he focuses on pediatric hematopoietic cell transplantation (HCT), with a specific emphasis on HCT for patients with inherited and acquired bone marrow failure.
YoungJae Lee, MSW LCSW
Licensed Clinical Social Worker
Children’s Cancer Institute
Hackensack Meridian Health
YoungJae Lee, MSW, LCSW, is a Licensed Clinical Social Worker at Children’s Cancer Institute Hackensack Meridian Health where she specializes in Pediatric Oncology and Hematology.
|Jennifer Krajewski, MD||15 minutes|
|Timothy Olson, MD||15 minutes|
|Youngjae Lee, LICSW||15 minutes|
Resources for clinicians and patients
Hematology, oncology and BMT nurses; hematology, oncology and BMT social workers at intermediate to advanced levels of practice, experience and licensure; transplant center coordinators; payer case managers and other allied health professionals.
Accreditation and Certification
Nurses: The National Marrow Donor Program is
accredited as a provider of continuing nursing education by the American Nurses
Credentialing Center’s Commission on Accreditation.
Up to 1.0 contact hours may be claimed for this educational activity.
Social Workers: National Marrow Donor Program, #1386, is approved as a provider for social work continuing education by the Association of Social Work Boards (ASWB) www.aswb.org, through the Approved Continuing Education (ACE) program. National Marrow Donor Program maintains responsibility for the program. ASWB Approval Period: 08/10/2016 - 08/10/2019. Social workers should contact their regulatory board to determine course approval for continuing education credits.
Social workers participating in this course will receive 1.0
clinical continuing education clock hours.
Laboratory Professionals: The NMDP is approved as a provider of continuing education in the clinical laboratory sciences through the ASCLS PACE Program. ASCLS PACE® 1861 International Drive, Suite 200, McLean, VA 22102.
Up to 1.0 contact hours may be claimed for program #115-008-19.
Participants must complete and submit the evaluation for the activity in order to receive a continuing education certificate or a certificate of completion. Certificates will be issued via email.
If you have any questions regarding this activity or for assistance for people with disabilities, grievances, please email email@example.com.
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