Donor Patient Confidentiality

NMDP^SM places the utmost importance on patient and donor confidentiality. We are committed to protecting the identity and privacy of all patients and donors, and, as such, we comply with all applicable local, federal, and international laws.

Confidentiality Guidelines

Follow these guidelines and procedures for protecting the privacy of people who receive transplants or donate blood stem cells.

• PL-00017 Confidential Information Policy (Legacy P00023) (Opens in a new tab)
  Policy to protect against unauthorized disclosure or use of confidential information. ,
• SOP-00106 Confidential Information Standard Operating Procedure (Donor/Patient Confidentiality) (Legacy S00339) (Opens in a new tab)
  Procedure for protection of confidential information and response to disclosures of such information. Confidentiality
• Guidelines for Working with the Media (Opens in a new tab)
  Guidelines for protecting donor and patient confidentiality when working with the media.
• Social Media Confidentiality Guidelines for Network Partners (Opens in a new tab)
  Guidelines for social media best practices for maintaining donor and patient confidentiality.
• Guidelines for Social Media Sharing for Donors
  Guidelines for donors to use when sharing donation information on social media websites.
• International Policies Regarding Post-Transplant Communications between Donors and Recipients (Opens in a new tab) (XLSX)
  Listing of international cooperative registries, donor centers, and transplant centers, and their policies regarding communication between donor and recipient and patient updates.
• PL-00065 Related Donor/Patient Confidentiality Information Policy (Legacy P00087) (Opens in a new tab)
  Policy to protect against unauthorized disclosure or use of confidential information for related donor/patient activities.
• SOP-00254 Related Donor/Patient Confidential Information Standard Operating Procedure (Legacy S00621) (Opens in a new tab)
  Procedure for protection of confidential information for related donor/patient activities and response to disclosures of such information.
• FRM-00556 Post-Transplant Consent to Share Anonymous Correspondence (Legacy F01367) (Opens in a new tab) 
• FRM-00557 Consent to Share Anonymous Correspondence - Spanish (Legacy F01368) (Opens in a new tab)
• PL-00113 Policy for Sharing Post-Transplant Anonymous Correspondence (Legacy P00147) (Opens in a new tab) 

Post-Transplant Procedures

These procedures explain how to appropriately obtain a donor or recipient's signed consent to release their personal information to their transplant partner, and how to facilitate the exchange of anonymous items (letters, cards and gifts) between donors and recipients after transplant.

AID-00098 Anonymous Correspondence and Gifts: Policies and Procedures (Legacy A00501) (Opens in a new tab)
Procedure for effectively reviewing and submitting to the NMDP cards, letters, and gifts to be exchanged between donors and recipients after transplant.

AID-00097 Procedure for Obtaining Post-Transplant Consent to Release Personal Information (Legacy A00500) (Opens in a new tab)
Instructions on how to correctly expedite content requests through NMDP are detailed in this document.